Author Topic: Medical Status of Boardmembers  (Read 21033 times)

Dire Ear

  • Hero Member
  • *****
  • Posts: 1289
    • View Profile
Re: Medical Status of Boardmembers...I'll start
« Reply #105 on: January 30, 2020, 05:09:27 PM »
All the best you 3,  keep er lit

Under Lights

  • Hero Member
  • *****
  • Posts: 1359
    • View Profile
Re: Medical Status of Boardmembers...I'll start
« Reply #106 on: January 30, 2020, 09:35:05 PM »
Cheers Farrandeelin good post.

Ball Hopper

  • Hero Member
  • *****
  • Posts: 1295
    • View Profile
Re: Medical Status of Boardmembers...I'll start
« Reply #107 on: January 30, 2020, 09:54:18 PM »
It definatley helps to share, even on this almost-anonymous forum.

Ball Hopper

  • Hero Member
  • *****
  • Posts: 1295
    • View Profile
Re: Medical Status of Boardmembers
« Reply #108 on: February 09, 2020, 10:04:17 PM »
'Tis half-time!!! Completed chemo 4 from 4-6 February.   One more session starts in February (18th) and three start in March (3rd, 17th and 31st) to make up the second half…will be there in no time!

Weight loss came in at 3lbs/1.5kg, which is acceptable. 

White blood cell counts and platelets were back to normal by chemo 4 test, even if at the low end of the normal range.  Glucose levels also near normal, if a little high.  It is all balancing out, even if at the edges.

Cold sensitivity set in earlier this time, with my fingers numb as soon as I got home.  Again, better management helped me overcome it – and the toes tingling for most of the following day – warm water soaking for the fingers several times a day and wearing gloves fulltime along with super warm socks.  It is a very odd side effect.  More or less gone by late Saturday, but still keeping away from touching cold objects – might as well keep that habit full time until done with the drug that causes it.
 
A little bit of mouth tenderness again, but relatively mild – plenty of rinsing the mouth with salt/baking soda in warm water, along with a soft toothbrush, several times each day helps greatly.  However, appetite stayed good throughout and I think I’m keeping my strength up fairly well.

Fatigue did not hit me hard on this session, although I took afternoon naps on Thursday and Friday as the body told me I needed to do so.  Again, going to bed earlier every night (9:30pm or so) was a big help. 

Avoiding infection is top priority.  Working from home is a blessing as I avoid people all the time.  Being careful around raw foods is important, as is letting any visitors know that if they have even been in contact with sick people, let alone being sick themselves, then they can visit some other time.

Next oncologist review “between sessions” is set for Wednesday and I’m hoping we will have a good plan to win the second half of Part 1 of my treatment.  Again, I'm very pleased with the way things are going...the chemo drugs are working and I'm not suffering greatly in any way from the side effects.   I feel blessed that the side effects are not dragging me down and I really enjoy the days I’m feeling great – which is the vast majority of the time.

GAAGO was prime viewing this week, plus a totally harmless BBC show New Tricks (on season 4) that is funny in patches.  Vera (season 8) is on the list for next week.
 
Half-way there is a great feeling.  I’m not suffering much and am eating well, not much more I can do but face each day with a good attitude and continue to enjoy the days I’m feeling good to the max.

Thanks again for all the support and good wishes. 

balladmaker

  • Hero Member
  • *****
  • Posts: 1465
  • Irish To The Core!
    • View Profile
Re: Medical Status of Boardmembers
« Reply #109 on: February 09, 2020, 10:14:53 PM »
'Tis half-time!!! Completed chemo 4 from 4-6 February.   One more session starts in February (18th) and three start in March (3rd, 17th and 31st) to make up the second half…will be there in no time!

Weight loss came in at 3lbs/1.5kg, which is acceptable. 

White blood cell counts and platelets were back to normal by chemo 4 test, even if at the low end of the normal range.  Glucose levels also near normal, if a little high.  It is all balancing out, even if at the edges.

Cold sensitivity set in earlier this time, with my fingers numb as soon as I got home.  Again, better management helped me overcome it – and the toes tingling for most of the following day – warm water soaking for the fingers several times a day and wearing gloves fulltime along with super warm socks.  It is a very odd side effect.  More or less gone by late Saturday, but still keeping away from touching cold objects – might as well keep that habit full time until done with the drug that causes it.
 
A little bit of mouth tenderness again, but relatively mild – plenty of rinsing the mouth with salt/baking soda in warm water, along with a soft toothbrush, several times each day helps greatly.  However, appetite stayed good throughout and I think I’m keeping my strength up fairly well.

Fatigue did not hit me hard on this session, although I took afternoon naps on Thursday and Friday as the body told me I needed to do so.  Again, going to bed earlier every night (9:30pm or so) was a big help. 

Avoiding infection is top priority.  Working from home is a blessing as I avoid people all the time.  Being careful around raw foods is important, as is letting any visitors know that if they have even been in contact with sick people, let alone being sick themselves, then they can visit some other time.

Next oncologist review “between sessions” is set for Wednesday and I’m hoping we will have a good plan to win the second half of Part 1 of my treatment.  Again, I'm very pleased with the way things are going...the chemo drugs are working and I'm not suffering greatly in any way from the side effects.   I feel blessed that the side effects are not dragging me down and I really enjoy the days I’m feeling great – which is the vast majority of the time.

GAAGO was prime viewing this week, plus a totally harmless BBC show New Tricks (on season 4) that is funny in patches.  Vera (season 8) is on the list for next week.
 
Half-way there is a great feeling.  I’m not suffering much and am eating well, not much more I can do but face each day with a good attitude and continue to enjoy the days I’m feeling good to the max.

Thanks again for all the support and good wishes.

Inspirational BH, keep it going and all of this will be in the past before you know it, and you'll be facing into another summer and championship in great form!  Wishing you all the best over the coming treatments.

macdanger2

  • Hero Member
  • *****
  • Posts: 4649
    • View Profile
Re: Medical Status of Boardmembers
« Reply #110 on: February 09, 2020, 10:20:04 PM »
Great stuff BH, keep it going

illdecide

  • Hero Member
  • *****
  • Posts: 7743
  • Quit your Jibba Jabbing Fool
    • View Profile
Re: Medical Status of Boardmembers
« Reply #111 on: February 10, 2020, 03:40:33 PM »
Brilliant BH, fair play to you. Keep it up and the treatment will be over in no time at all, dunno if i'd be as strong as you are so hats off to ya.
I can swim a little but i can't fly an inch

Ball Hopper

  • Hero Member
  • *****
  • Posts: 1295
    • View Profile
Re: Medical Status of Boardmembers
« Reply #112 on: February 23, 2020, 07:34:44 PM »
Into the second half now.  Completed chemo 5 from 18-20 February.   Just the three sessions in March (3rd, 17th and 31st) to go.

Weight loss came in at 5lbs/2.2 kg, which is ok…total weight loss from chemo 2 on 7 Jan is only 8 lbs/3.7 kg.  I’ve a feeling the second half will hit me harder than the first, but that is to be expected.

White blood cell and platelet counts still normal by chemo 5 test, even if at the low end of the normal range.  Glucose levels also nearer normal, if a little high.  It is all balancing out, even if at the edges.

Cold sensitivity set in early again with my fingers numb as soon as I got home.  Again, better management helped me overcome it – and the toes tingling for most of the following day – warm water soaking for the fingers several times a day and wearing gloves fulltime along with super warm socks.  It is a very odd side effect.  More or less gone by Sunday, but still keeping away from touching cold objects – might as well keep that habit full time until done with oxaliplatin, the drug that causes it.

A few have enquired about this cold sensitivity, so I did a little research, with the medical term being Peripheral Neuropathy:  "Peripheral Neuropathy is described as a numbness, tingling, or burning sensation in the fingers, hands, feet, or toes.  Certain chemotherapy drugs can affect your nerves in such a way that they can't communicate properly with the brain.  This miscommunication causes symptoms such as pain/burning or numbness.  You may be more prone to developing neuropathy if you have diabetes.  Oxaliplatin can cause increased sensitivity to cold only."
 
A little bit of mouth tenderness again, but relatively mild – plenty of rinsing the mouth with salt/baking soda in warm water, along with a soft toothbrush, several times each day helps greatly.  However, appetite stayed good throughout and I think I’m keeping my strength up fairly well.

Fatigue set in early in this session too, afternoon naps till Saturday as the body told me I needed to do so.  Expecting this to increase in March, but the solution is easy…nap time as needed.  Again, going to bed earlier every night (nearer 9pm or so most nights now) is a big help. 

Had an excellent oncologist review “between sessions” chemo 4 and 5.  Everything is going according to plan and we are getting things lined up for Part 2 of treatment…a “lighter” chemo dose and daily radiation.  Again, I'm very pleased with the way things are going...the chemo drugs are working and I'm not suffering greatly in any way from the side effects.   I feel blessed that the side effects are not dragging me down and I really enjoy the days I’m feeling great – which is the vast majority of the time.

GAAGO going full belt along with Luther season 2 on DVD.
 
I’ll be definitely playing against the wind in the second half…hopefully I can be done before the sideways rain and sleet hit me.  I’m not suffering too much yet and am eating well, not much more I can do but face each day with a good attitude and continue to enjoy the days I’m feeling good.

Thanks again for all the support and good wishes. 

Ball Hopper

  • Hero Member
  • *****
  • Posts: 1295
    • View Profile
Re: Medical Status of Boardmembers
« Reply #113 on: February 23, 2020, 07:36:37 PM »
Hope all the hipsters and gout guys are surviving the winter. 

Let us know how the battles are going.

Sharing helps!!!

BennyCake

  • Hero Member
  • *****
  • Posts: 8534
    • View Profile
Re: Medical Status of Boardmembers
« Reply #114 on: February 23, 2020, 08:02:29 PM »
Hopefully the second half goes well, BH.

The side effects can’t be easy dealing with, but your positive attitude with it all is fantastic.

Best of luck with future sessions and let us know how you’re getting on, if you can.

Lar Naparka

  • Hero Member
  • *****
  • Posts: 4393
  • I just know this is gonna be our year!
    • View Profile
Re: Medical Status of Boardmembers
« Reply #115 on: February 23, 2020, 10:11:32 PM »
Hope all the hipsters and gout guys are surviving the winter. 

Let us know how the battles are going.

Sharing helps!!!
Keep the faith, BH!
Neither hips, gout, epilepsy and God knows what else kept me away from Clones today and won't keep me pinned in next week either if I can help it.
Stay positive at all costs if you can because it positively affects your overall health and I'm talking from personal experience.
Nil Carborundum Illegitemi

Tyrdub

  • Newbie
  • *
  • Posts: 205
    • View Profile
Re: Medical Status of Boardmembers
« Reply #116 on: February 24, 2020, 08:38:40 AM »
Inspirational BH, keep her flat to the mat

Taylor

  • Hero Member
  • *****
  • Posts: 1924
    • View Profile
Re: Medical Status of Boardmembers
« Reply #117 on: February 24, 2020, 08:44:14 AM »
Great work BH.
An inspiration

macdanger2

  • Hero Member
  • *****
  • Posts: 4649
    • View Profile
Re: Medical Status of Boardmembers
« Reply #118 on: February 24, 2020, 10:07:50 AM »
Fair play BH, good to hear that it's going well

illdecide

  • Hero Member
  • *****
  • Posts: 7743
  • Quit your Jibba Jabbing Fool
    • View Profile
Re: Medical Status of Boardmembers
« Reply #119 on: February 24, 2020, 10:27:02 AM »
Great BH, keep er lit. I'm glad you're doing so well (under the circumstances), keep positive and keep fighting. Everyone on the Board here is singing your praises and fighting your corner.

I'll be 4 weeks this Wednesday from the Hip replacement, down to one crutch now and started the gym again. Done 30 mins on spin bike which after a shaky 5 mins at the start (stiff) surprisingly felt good. However, was stiff and sore afterwards. Back up to gym around lunchtime today for another go at it...enjoying the break away from work TBH but would be better if i was fit and well but at least i've the time off to get myself back into shape (they say round is a shape...lol). Lent diet starts on Wed so should play into my hands for the 1 stone weight loss needed for middle of May (cycling trip to Spain with the lads)
I can swim a little but i can't fly an inch