Author Topic: Medical Status of Boardmembers  (Read 23126 times)

Jeepers Creepers

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Re: Medical Status of Boardmembers
« Reply #225 on: October 27, 2020, 12:13:31 PM »
Sweet to the beat BH! Always good to hear your updates!

balladmaker

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Re: Medical Status of Boardmembers
« Reply #226 on: October 27, 2020, 05:48:44 PM »
Well done BH, inspirational stuff!

GiveItToTheShooters

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Re: Medical Status of Boardmembers
« Reply #227 on: October 27, 2020, 10:27:36 PM »
Inspirational stuff BH! Keep er lit and take care!

macdanger2

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Re: Medical Status of Boardmembers
« Reply #228 on: October 27, 2020, 10:35:49 PM »
Nice one BH, fair play to you

trileacman

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Re: Medical Status of Boardmembers
« Reply #229 on: October 27, 2020, 11:35:23 PM »
Congrats BH.

I amazed reading the details of your ops. As someone who works in health what can be achieved by modern medicine is actually mind-blowing.
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Ball Hopper

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Re: Medical Status of Boardmembers
« Reply #230 on: December 02, 2020, 06:48:51 AM »
My second leak test was on Monday last, 30 November.  Unfortunately, the repairs of the first leak test proved insufficient as the second leak test showed the original leak path has not closed fully.
 
However, the leak opening is now smaller in size and the track of the leak is much thinner, described as almost wisp-like on the screen.  So progress is being made, even if at a slower than expected rate.

The surgeon said the leak could close by itself over the next year or so, but he can help it along by conducting another non-surgical procedure where a small drain will be placed at the leak opening and the area will be dealt with abrasively to promote scarring and healing.  Conducted under general anesthetic and in and out of the hospital inside half a day. This means I’ll undergo another repair procedure on 9 December and the clock restarts with regards to healing and the leak path closing fully.

He says the radiation knocked the area out of commission, more or less, and is very slow to recover.  The rate is also slow due to the width of the opening among other things – imagine a large cut on your knee…the edges of skin in the middle might be a fair distance apart and will take time to grow back together.  Hence the use of stitches on occasion, but the gap in my case was not wide enough to need stitching initially, although I’ll bet the surgeon might say in hindsight that stitching would have set me right in October with a successful test 2 this week rather than needing a second repair.

I’m also very slow in recovering as the early August surgery took so much out of me, with the body fighting small battles on several fronts.  Since the area from the large intestine to daylight at the rear end is not in use right now, the body doesn’t need to focus on fixing anything there with any degree of urgency, which is another contributing factor to the failure of both leak tests.

We will probably give the area a third month to repair this time around, rather than the two months from the early October first leak repair, so it looks like March 2021 for the next test.  If successful, the ileostomy reversal surgery will take place within two weeks of the leak test.  It could be a Happy Easter after all.

Meanwhile, I need to continue to provide the body with the fuel sources necessary for it to do the repairs.  Plenty protein in the diet, plus add some Vitamin D which came back low in a recent test.  In addition to bone health, Vitamin D has other roles in the body, including reduction of inflammation as well as modulation of such processes as cell growth, neuromuscular and immune function, and glucose metabolism – all of which will aid in accelerating my healing process.

The ileostomy bag is part and parcel of my daily life at this stage.  I’m up two or three times a night to take care of it, so multiple alarm times are set each night as I’m sleeping so well now.  The bag only needs to be changed out about every four or five days and that is not the chore it used to be – I haven’t had a leak in ages, a sign of proper placement and care.
 
Peripheral neuropathy is still with me, although improving every month.  Fingers are almost back to normal, but still have a tingling in them.  My left foot is still sending wrong signals to the brain – it feels like I have about 4 insoles under it and every solid surface I stand on barefoot feels like it is subzero temperature, and that includes the bathroom floor and even the shower once the hot water is turned off.  The right foot is much better, maybe a single insole added. Rubbing my bare feet on surfaces of different texture is supposed to help…things like rubbing my feet with a sock, dragging them along a carpet and also along a coarser rug…the coarser the texture the more painful it feels, but the nerves are being stimulated and will hopefully revert to normal soon.  When I’ll be able to drag them along a coarse and bristly surface, like a doormat, without pain will be signal of being cured – that could take another six months or so.  I’m still taking a prescription drug for this odd and annoying, but not overly painful, condition.

Weight is staying at the same good level as last report and glucose numbers continue to fall and are now within the normal range, if only barely.  I’m walking two miles a day at about 16 minutes a mile pace and I’m feeling stronger every week…I made sure to get my walk done on the day I got the leak test result…no point in wallowing in any sort of pity as a result of a minor setback, since I know I’m going to win the war eventually.  Remember, my pathology report from August says I'm Cancer Free.

The initial disappointment of failing the second leak test has passed and I’m back on track to working hard to be ready for the next one.  In the big picture, the length of my treatment has extended from 12 months to 16 or so…almost negligible in the great scheme of things.

Once again, I thank everyone for the massive sense of support I feel, whether expressed directly or not.   It adds to my motivation when I see the replies and it helps me prove to you that, since you are on my team, I must do all I can to win this.

I’ll update again before Christmas, meanwhile everyone remain safe and manage your health properly – it is priceless.


bannside

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Re: Medical Status of Boardmembers
« Reply #231 on: December 02, 2020, 08:21:01 AM »
Great stuff BallHopper. You're still going through the mixer, but it looks like your resolve is still fully intact. The worst part is over hopefully, head down and face up the rest. You'll be a new man by the summer, hopping balls for fun.

Rossfan

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Re: Medical Status of Boardmembers
« Reply #232 on: December 02, 2020, 09:40:07 AM »
Best wishes Ball Hopper 👍
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Denn Forever

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Re: Medical Status of Boardmembers
« Reply #233 on: December 02, 2020, 12:01:02 PM »
Keep her lit BH. 
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that says what he means and
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Taylor

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Re: Medical Status of Boardmembers
« Reply #234 on: December 02, 2020, 12:31:59 PM »
Well done BH - keep at it

Jeepers Creepers

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Re: Medical Status of Boardmembers
« Reply #235 on: December 02, 2020, 01:12:06 PM »
Good stuff BH. Keep it going.

ziggy90

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Re: Medical Status of Boardmembers
« Reply #236 on: December 02, 2020, 02:00:45 PM »
All the best BH. You've the hard miles done, small steps now.
Best wishes to you and yours for the season ahead.
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Dinny Breen

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Re: Medical Status of Boardmembers
« Reply #237 on: December 25, 2020, 12:27:09 AM »
The best thread in 2020. Best wishes BH and happy Christmas to all board members. May 2021 be as kind as 2020 was harsh.
#newbridgeornowhere

illdecide

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Re: Medical Status of Boardmembers
« Reply #238 on: December 25, 2020, 01:14:20 PM »
The best thread in 2020. Best wishes BH and happy Christmas to all board members. May 2021 be as kind as 2020 was harsh.

Good man Dinny B...Yip there wasn't much good news in 2020 but this thread was certainly one of them hearing how well BH done coping and sharing his illness. An inspiration for sure and hope 2021 is BH's best year.
Have a good one folks and a better 2021
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Lotto

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Re: Medical Status of Boardmembers
« Reply #239 on: December 25, 2020, 05:09:46 PM »
Inspirational thread, fair play Ball Hopper. Amazing stuff and all the best for 2021.