Epilepsy

[ziggysego]

I have another condition that VERY FEW people (on here) know about so I'm not prepared to go public about it... yet

We all know... You're a Mayo man!

[Farrandeelin]

I have another condition that VERY FEW people (on here) know about so I'm not prepared to go public about it... yet

Will there be a press conference?

No, I rather tell people in private, behind closed doors etc!

Very funny ziggy btw!

[mayogodhelpus@gmail.com]

Lady GAA GAA twas a bit silly (funny) but not exactly the best place to do it!

Master Yoda why did you repost his flash photos, a person might have scrolled down quick to avoid and then hit by your post.

[mayogodhelpus@gmail.com]

Yea it is actually hilarious as I stated myself. 


Lar, just wondering what other problems that could be detrimental to one with epilepsy. I have another condition that VERY FEW people (on here) know about so I'm not prepared to go public about it... yet

Cross dressing!

Daniel O'Donnell fan!

Grand Master of the KKK!

A typing spacemonkey!

Really from Roscommon!

[Lar Naparka]

Yea it is actually hilarious as I stated myself. 


Lar, just wondering what other problems that could be detrimental to one with epilepsy. I have another condition that VERY FEW people (on here) know about so I'm not prepared to go public about it... yet

That's okay; there can be a load of related problems that can arise as millions of brain cells can get fried in a prolonged attack. After a max of 5 minutes, cells start to die and they ain't renewable. Anything I am saying here is coming from those who have treated me so I am not doing any solo runs with what I am saying.
Don't let the slagging put you off; everyone who has posted on this thread seems a decent enough skin to me. I think it's just that most people tend to make light of anything they are not comfortable with. I know that I am very much a smart ass myself when I mention my own problems in any way. The reality is that I am scared but I try to make it all seem somehow less threatening by cracking jokes.  It's a bit like whistling past the graveyard as the old saying puts it. I still enjoy a couple of scoops almost every night and don't lose any sleep over it either.

It seems to me that you are finding it hard to come to terms with this condition; a case of "why me" maybe.

Like I said, feel free to PM me at any time if you feel the need to. I can't work miracles; after all, I haven't succeeded in helping Tubberman get rid of what ails him yet but at least he seems to have quietened down a bit lately. (I'm beginning to miss him!) However, what I don't know might just be a phone call away. I am in regular contact with some of the neuros at Beaumont Hospital.
I don't see any reason for you to go public about anything connected with anything-unless you feel comfortable about doing so
I have no problem doing this if I feel my experiences can be of benefit to anyone else.

[Farrandeelin]

Thankfully my other condition has nothing to do with the epilepsy at all, but sometimes I do often get the 'Why me? syndrome' as you've stated. It's bad enough been a Mayo fan!

[Tyrones own]

Funniest post in the thread is definitely master yodas.....complaining about the pics then reposting them......smart

Yea, I was asking my arse whether or not it was bothered enough for me to post complaining about your post and then I saw that and laughed.

In fairness Muppet..I'd say you're more prone to talking out of it than talking to it

[haranguerer]

Lady GAA GAA twas a bit silly (funny) but not exactly the best place to do it!

Master Yoda why did you repost his flash photos, a person might have scrolled down quick to avoid and then hit by your post.

It was the only place to do it. T'wouldnt really have worked on any other thread...

[mayogodhelpus@gmail.com]

Lady GAA GAA twas a bit silly (funny) but not exactly the best place to do it!

Master Yoda why did you repost his flash photos, a person might have scrolled down quick to avoid and then hit by your post.

It was the only place to do it. T'wouldnt really have worked on any other thread...

I found Master Yoda's post funny too, he complained about the post but he quoted the picture again. 

[Farrandeelin]

Couldn't be arsed in posting a new topic, but do people really become seizure free? My longest time was 5 months free. I usually get a seizure every two months.

Was at the neurologist all evening (in a waiting room for the most part) and they're about to change my meds. I'm a bit anxious about this as I'd nearly prefer to be stuck with the devil I know rather than changing, although hopefully it will cut out all seizures.

Not sure why I posted this, but I feel that someone on here who has epilepsy may have a better understanding of the condition than anyone else, if ye know what I mean.

[imtommygunn]

A good friend of mine has been seizure free for tennish years now. He wasn't epileptic until 18 and up untill 22 ish fitted a couple of times a year.

He is very controlled though and in terms of sleep and things like alcohol levels never goes outside his comfort zone. I don't pretend to be an expert on the subject but in the early 20s being seizure free seemed like an impossibility and is now a reality. (Mid 30s)

[Tony Baloney]

Getting the right cocktail of meds is trial and error. The wee lad has a breakthrough seizure very rarely these days so it is very manageable for us although we never leave the house without Midazolam. I would say you'll get there but it will take a bit of tinkering by the docs.

[Lar Naparka]

Couldn't be arsed in posting a new topic, but do people really become seizure free? My longest time was 5 months free. I usually get a seizure every two months.

Was at the neurologist all evening (in a waiting room for the most part) and they're about to change my meds. I'm a bit anxious about this as I'd nearly prefer to be stuck with the devil I know rather than changing, although hopefully it will cut out all seizures.

Not sure why I posted this, but I feel that someone on here who has epilepsy may have a better understanding of the condition than anyone else, if ye know what I mean.

Sure Farr, I know a few who were told they no longer needed to take anti-seizure medication.
I've been incident free for more than 7 years now but I'm not taking any chances and my GP agrees.
Generally, if you happen to find a medication that suits you, neurologists are very slow to change it.

I'm on Lamactil and I'm told it should provide protection for life but I know some of the older ones , while they may be very effective to begin with, may lose their effectiveness as time passes and I'd imagine that this is what is happening in your case.
I wouldn't let it worry me too much.

[Farrandeelin]

I'm seizure free since they changed the meds.* However, I find lately (past month) that I'm becoming more forgetful. My wife-to-be reckons I've been this way all the time, in particular with regards day to day things. I'm also becoming forgetful about work related things. Lots of people reckon it could be a side effect of the meds. Anybody else notice this in people they know with epilepsy?

[Farrandeelin]

Seem to be talking to myself here. Anyway here goes. Nothing to lose. A couple of days after I wrote that post I had a seizure at school just after lunch ended. Luckily I was in the staffroom at the time. It prevented me from driving for a year, which at the time was hard to take. The months were trundling on. I had one over the summer on my last night on honeymoon. I suppose what triggered that one was the comedown from the previous few weeks. Then a fortnight or 3 weeks ago, I had a bad one. I was at school in the morning so no child was in the room with me. Haven't a clue how or what triggered it. I'm just worried sick that I won't be able to drive again. I am sick to the pit of my stomach that it might happen in school in front of a child. I don't know what to do about these latest ones. But I'm not happy. Rant over.